This is my first blog. Well as everyone starts to get to know me. I want to start and talk about my daughter. She was born a very healthy little girl. No major complications during my pregnancy with her. We live in Canada now winters get fairly cold, you can imagine the surprise we go when we found out that our daughter had Cold Urticaria.
She started breaking out when she was just a baby. We thought like everyone else did at the time that it was just wind burn. As time passed it just got progressively worst. We went to see a few different allergists and they wouldn't take it seriously. It wasn't till I took upon myself to google allergists in our area to find one that knew what this condition was. We started realizing just how bad she had it when it didn't just take effect on her cheeks but all over her body. It wasn't just the rash, hives, and itchiness but the complete change in character when it would happen.
She would just lay there and not be as responsive and just want to sleep. At first we didn't recognize it but this turned out to be anaphylaxis happening. We took CPR/ First Aid and got our defibrillator licences. We were terrified that it could happen again. At the age of 18 months she was officially diagnosed. She had daily medication she had to take. No cure or no help is provided with this diagnosis. She can't go outside under -10C, so we have to pick her up from daycare early each day because no one is inside to watch her.
We couldn't take her on a bus so even though we couldn't afford it we bought a car. Going to the grocery store at any time during the year is hectic because we have to make sure she is accurately dressed for it. She can't play outside most of the year, she is kept indoors, we carry epi-pens around all the time. Not only does she have CU but she also has asthma which effect each other. Everyday she takes two different types of puffers, twice a day plus her adult dose of antihistamines.
It's not only hard on us watching her go through this but as she gets older she understands more and more of what she can't and can do. It's also physically, emotionally difficult on her , you can see it when she gets a reaction. We just hope and wish that some day it will go away and she can do all the things she hasn't been able to experience. Or that somewhere someday someone starts to do some research to see what are the causes of this type of allergy. Did you know that this allergy existed?
CP
She started breaking out when she was just a baby. We thought like everyone else did at the time that it was just wind burn. As time passed it just got progressively worst. We went to see a few different allergists and they wouldn't take it seriously. It wasn't till I took upon myself to google allergists in our area to find one that knew what this condition was. We started realizing just how bad she had it when it didn't just take effect on her cheeks but all over her body. It wasn't just the rash, hives, and itchiness but the complete change in character when it would happen.
She would just lay there and not be as responsive and just want to sleep. At first we didn't recognize it but this turned out to be anaphylaxis happening. We took CPR/ First Aid and got our defibrillator licences. We were terrified that it could happen again. At the age of 18 months she was officially diagnosed. She had daily medication she had to take. No cure or no help is provided with this diagnosis. She can't go outside under -10C, so we have to pick her up from daycare early each day because no one is inside to watch her.
We couldn't take her on a bus so even though we couldn't afford it we bought a car. Going to the grocery store at any time during the year is hectic because we have to make sure she is accurately dressed for it. She can't play outside most of the year, she is kept indoors, we carry epi-pens around all the time. Not only does she have CU but she also has asthma which effect each other. Everyday she takes two different types of puffers, twice a day plus her adult dose of antihistamines.
It's not only hard on us watching her go through this but as she gets older she understands more and more of what she can't and can do. It's also physically, emotionally difficult on her , you can see it when she gets a reaction. We just hope and wish that some day it will go away and she can do all the things she hasn't been able to experience. Or that somewhere someday someone starts to do some research to see what are the causes of this type of allergy. Did you know that this allergy existed?
CP